Monday...

It's Monday. crazy day. Mornings always are a rush for us, we are a later sleeping clan, and the boys have to be at preschool by 9:00 so the get dressed-breakfast-brush teeth- routine is sometimes super fast. This morning was also a chemo day, so I need to be there by 9:30 for my Dr appt, and then the infusion part that lasts until about 12:30. It all adds up to a long morning. usually I come home after that, eat some lunch in the sun, and then take a nap. After that it's laundry, dishes, and such, and then have dinner for the boys when Brice picks them up at 5:00. Who says not working is easy?

Anyway, today was a more exciting Dr day, as we got news. Since the begining of this saga the "organ of origin" for my particular cancer has been unknown. Which means that I've been taking chemo that my Dr calls "the kitchen sink" hoping that we were close to something that would help. Well a new kind of testing technology has popped up recently, and my Dr sent in my case to be analyzed and today we got the results... (drum roll please) and it turns out to be cancer of the small intestine.

Is the test 100% perfect? No, but the margin of error is so small and the next likley is that it's stomach cancer and the treatment for both is really really similar. SO! We have some answers and some really big decisions to make. The good news is that 2 of the 3 chemo drugs I've been taking are the same for the new recommendation - Oxolyplatin and Xloda. The other drug I've been on is called Gemcidabine (these could all be mispelled, I don't know!) anyway, that one's got to go and Dr wants to replace it with a new combo called Fullfox and another one that starts with an A that I can't remember. But these last two need to be infused through a port (a permanent access in the chest about as big as a dime that is surgically implanted) rather than through a regular IV in my arm. So do I go with the permanent scar that has fairly good documentation of working well. The goal is remission, so I am ready to do whatever is best. Arrrgh, decisions and knowledge are lots to think of. So that is what is on my mind tonight. If you have any ideas / opinions that are POSITIVE in nature, email me and let me know.

Other than that, I feel real good. And now I'm going to go have some ice cream with caramel sauce. Yum!

I've come to realize that I'm not much of a blogger. I know, there are people who share every detail of their lives on their blogs... talk about too much info! I think about writing quite often, but then never quite get around to it. Seems like there's always something more interactive to do, and I definitely enjoy the human contact better than the keyboard. For instance, I never turn the computer on when the kids are up. They are just attracted to the keys like candy, and my blog would turn into in-decipherable blather. Besides, they are more fun to tickle and listen to them laugh than try and type anyway. But this morning, they are at Grandma and Grandpa's so I am blogging none the less.

Been feeling okay, there's no getting around it, this chemo thing sucks. For a week at a time I feel puky and tired and gross, and then it gets better... Right about the time I start feeling 'normal' again it's time for another round of chemo drugs. Figures. My doctor is really pleased with how I'm doing, so I guess that's a good indicator. I try like crazy to put on weight, we joke about 'packing on the pounds' but so far I have made little progress no matter how much ice cream I eat.

The boys are all doing great. Wesley wanted his training wheels off his bike, so Brice removed them and we were prepared with the band-aids for the big learning curve... but no, he just took off and never looked back. Now he's trying to wheelie (thanks Travis for showing him tricks) and jump. Vincent has decided it's fun to talk and now says everything all the time. And watch out it you have something he wants, because he'll just come and take it. I love the impulsiveness of a 20 month old. They love their preschool, each day they come home with nifty paper sharks and bees and all sorts of drawings.

And Brice, my rock, is so wonderful. He takes great care of me and makes sure I am as comfy as a barfy lazy girl can be. Really, life is quite good right now. If only the weather would shake of this rainy blanket and let some sun in, it would be quite perfect indeed.