It's Monday. crazy day. Mornings always are a rush for us, we are a later sleeping clan, and the boys have to be at preschool by 9:00 so the get dressed-breakfast-brush teeth- routine is sometimes super fast. This morning was also a chemo day, so I need to be there by 9:30 for my Dr appt, and then the infusion part that lasts until about 12:30. It all adds up to a long morning. usually I come home after that, eat some lunch in the sun, and then take a nap. After that it's laundry, dishes, and such, and then have dinner for the boys when Brice picks them up at 5:00. Who says not working is easy?
Anyway, today was a more exciting Dr day, as we got news. Since the begining of this saga the "organ of origin" for my particular cancer has been unknown. Which means that I've been taking chemo that my Dr calls "the kitchen sink" hoping that we were close to something that would help. Well a new kind of testing technology has popped up recently, and my Dr sent in my case to be analyzed and today we got the results... (drum roll please) and it turns out to be cancer of the small intestine.
Is the test 100% perfect? No, but the margin of error is so small and the next likley is that it's stomach cancer and the treatment for both is really really similar. SO! We have some answers and some really big decisions to make. The good news is that 2 of the 3 chemo drugs I've been taking are the same for the new recommendation - Oxolyplatin and Xloda. The other drug I've been on is called Gemcidabine (these could all be mispelled, I don't know!) anyway, that one's got to go and Dr wants to replace it with a new combo called Fullfox and another one that starts with an A that I can't remember. But these last two need to be infused through a port (a permanent access in the chest about as big as a dime that is surgically implanted) rather than through a regular IV in my arm. So do I go with the permanent scar that has fairly good documentation of working well. The goal is remission, so I am ready to do whatever is best. Arrrgh, decisions and knowledge are lots to think of. So that is what is on my mind tonight. If you have any ideas / opinions that are POSITIVE in nature, email me and let me know.
Other than that, I feel real good. And now I'm going to go have some ice cream with caramel sauce. Yum!
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That is great news Sharon! SO happy they know what they are dealing with. I told you about my friend who has had her port for about 4 years now. She has had minimal issues with it. I am sure you are going to make the right decision... what's a little scar in the long run right? ;) Love ya!!
ReplyDeleteHi Sharon! This is good news to finally know the origin of all this. Well, I don't know of anyone that has gone through anything even close to what you are. I agree with Kari, you will know the right decision and feel good about it. It was so GREAT to be with you this weekend. Thank you for spending all that time with us. I love you my friend!
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